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National Organization for Rare Disorders
Results: 62

#	Item
31	FDA Rare Disease Patient Advocacy Day Frank J. Sasinowski, M.S., M.P.H., J.D. Chairman of the Board National Organization for Rare Disorders 1 Add to Reading List Source URL: www.fda.gov Language: English Pharmaceutical sciences Orphan drug Orphan Drug Act FDA Fast Track Development Program National Organization for Rare Disorders Pharmaceuticals policy Food and Drug Administration Health
32	August 6, 2013 The Honorable Patrick J. Toomey 248 Russell Senate Office Building Washington, DC[removed]Dear Senator Toomey: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2013-09-26 15:14:25 Pharmaceuticals policy Pharmacology Rare disease National Organization for Rare Disorders Pharmaceutical sciences Pharmaceutical drug Patient Protection and Affordable Care Act Law Orphan Drug Act Health Drug discovery Orphan drug
33	August 6, 2013 The Honorable Jim Gerlach 2442 Rayburn House Office Building Washington, DC[removed]Dear Mr. Gerlach: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 known rar Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2013-09-26 15:15:11 Pharmaceuticals policy Pharmacology Rare disease National Organization for Rare Disorders Pharmaceutical sciences Pharmaceutical drug Patient Protection and Affordable Care Act Law Orphan Drug Act Health Drug discovery Orphan drug
34	Annual Report 2012 Dear NORD Members and Friends: We are proud to present this end-of-year report to you briefly Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-10-28 15:42:10 European Organization for Rare Diseases Rare disease Health economics Patient advocacy Orphan drug Canadian Organization for Rare Disorders Nord National Institutes of Health Health Medicine Rare Disease Day
35	Microsoft Word - NORD PNH InvitationOrlando 13.docx Add to Reading List Source URL: www.hypopara.org Language: English - Date: 2014-06-17 17:23:08 Health Medicine National Organization for Rare Disorders Rare disease Hypoparathyroidism
36	Microsoft Word - Knowing about Your Special Health Care Need.docx Add to Reading List Source URL: depts.washington.edu Language: English - Date: 2012-02-01 16:09:40 MedlinePlus Disease National Organization for Rare Disorders Health Medicine Epidemiology
37	FOR IMMEDIATE RELEASE (Your Organization) to Join NORD in Observing Rare Disease Day (CITY, STATE, DATE[removed]NAME OF YOUR ORGANIZATION) will be joining the National Organization for Rare Disorders (NORD) and others aro Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:16:36 Rare Disease Day European Organization for Rare Diseases Rare disease National Institutes of Health Medical terms Disease National Organization for Rare Disorders Global Genes Project Greek Alliance of Rare Diseases Health Medicine Epidemiology
38	DATE GOVERNOR’S NAME STATE CAPITOL BUILDING Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:14:12 Rare disease National Institutes of Health Rare Disease Day National Organization for Rare Disorders Canadian Organization for Rare Disorders Health Medicine Epidemiology
39	DATE GOVERNOR’S NAME STATE CAPITOL BUILDING Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:14:05 Rare disease National Institutes of Health Rare Disease Day National Organization for Rare Disorders Canadian Organization for Rare Disorders Health Medicine Epidemiology
40	STATEMENT of the National Organization for Rare Disorders (NORD) at the U.S. Food and Drug Administration Part 15 Public Hearing Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Pharmaceuticals policy Drug discovery Food and Drug Administration Therapeutics United States Public Health Service Orphan drug Orphan Drug Act Pharmaceutical industry Criticism of the Food and Drug Administration Pharmaceutical sciences Pharmacology Clinical research